From the Corner of His Eye

Page 50

The verdant hills to the east lay like slumbering giants under blankets of winter grass, bright in the morning sun. But when the shadows of clouds sailed off the sea and gathered inland, the slopes darkened to a blackish green, as somber as shrouds, and a landscape that had appeared to be sleeping forms now looked dead and cold.
Initially, the Pacific could not be seen beyond an opaque lens of fog, Yet later, when the mist retreated, the sea itself became a portent of sightlessness: Spread flat and colorless in the morning light, the glassy water reminded her of the depthless eyes of the blind, of that terrible sad vacancy where vision is denied.
Barty had awakened able to read. On the page, lines of type no longer twisted under his gaze.
While always Agnes held fast to hope, she knew that easy hope was usually false hope, and she didn't allow herself to speculate, even briefly, that his problem had resolved itself. Other symptoms-halos and rainbows-had disappeared for a time, only to return.
Agnes had read the last half of Red Planet to Barty just the previous night, but he brought the book with him, to read it again.
Although, to her eyes, the natural world had an ominous cast this morning, she was also aware of its great beauty. She wanted Barty to store up every magnificent vista, every exquisite detail.
Young boys, however, are not moved by scenery, especially not when their hearts are adventuring on Mars.
Barty read aloud as Agnes drove, because she'd enjoyed the novel only from page 104. He wanted to share with her the exploits of Jim and Frank and their Martian companion, Willis.
Though she worried that reading would strain his eyes, worsening his condition, she recognized the irrationality of her fear. Muscles don't atrophy from use, nor eyes wear out from too much seeing.
Through miles of worry, natural beauty, imagined omens, and the iron-red sands of Mars, they drove at last to Franklin Chan's offices in Newport Beach.
Short and slender, Dr. Chan was as self-effacing as a Buddhist monk, as confident and as gracious as a mandarin emperor. His manner was serene, and his effect was tranquility.
For half an hour he studied Barty's eyes with various devices and instruments. Thereafter, he arranged an immediate appointment with an oncologist, as Joshua Nunn had predicted.
When Agnes pressed for a diagnosis, Dr. Chan quietly pleaded the need to gather more information. After Barty had seen the oncologist and had additional tests, he and his mother would return here in the afternoon to receive a diagnosis and counseling in treatment options.
Agnes was grateful for the speed with which these arrangements were made, but she was also disturbed. Chan's expeditious management of Barty's case resulted in part from his friendship with Joshua, but an urgency arose, as well, during his examination of the boy, from a suspicion that he remained reluctant to put into words. Dr. Morley Schurr, the oncologist, who had offices in a building near Hoag Hospital, proved to be tall and portly, although otherwise much like Franklin Chan: kind, calm, and confident.
Yet Agnes feared him, for reasons similar to those that might cause a superstitious primitive to tremble in the presence of a witch doctor. Although he was a healer, his dark knowledge of the mysteries of cancer seemed to give him godlike power; his judgment carried the force of fate, and his was the voice of destiny.
After examining Barty, Dr. Schurr sent them to the hospital for further tests. There they spent the rest of the day, except for an hour break during which they ate lunch in a burger joint.
Throughout lunch and, indeed, during his hours as an outpatient at the hospital, Barty gave no indication that he understood the gravity of his situation. He remained cheerful, charming the doctors and technicians with his sweet personality and precocious chatter.
In the afternoon, Dr. Schurr came to the hospital to review test results and to reexamine Barty. When the early-winter twilight gave way to night, he sent them back to Dr. Chan, and Agnes didn't press Schurr for an opinion. All day she'd been impatient for a diagnosis, but suddenly she was loath to have the facts put before her.
On the short return trip to the ophthahnologist, Agnes crazily considered driving past Chan's office building, cruising onward—ever onward-into the sparkling December night, not just back to Bright Beach, where the bad news would simply come by phone, but to places so far away that the diagnosis could never catch up to them, where the disease would remain unnamed and therefore would have no power over Barty.
“Mommy, did you know, every day on Mars is thirty-seven minutes and twenty-seven seconds longer than ours?"
“Funny, but none of my Martian friends ever mentioned it."
“Guess how many days in a Martian year."
“Well, it's farther from the sun. . . “
“One hundred forty million miles!"
“So ... four hundred days?"
“Lots more. Six hundred eighty-seven. I'd like to live on Mars, wouldn't you?"
“Longer to wait between Christmases,” she said. “And between birthdays. I'd save a bunch of money on gifts."
“You'd never cheat me. I know you. We'd have Christmas twice a year and parties for half birthdays."
“You think I'm
“Nope. But you're a real good mom."
As if he sensed her reluctance to return to Dr. Chan, Barty had kept her occupied with talk of the red planet as they approached the office building, had talked her off the street, along the driveway, and into a parking space, where finally she relinquished the fantasy of an endless road trip. At 5:45, long past the end of office hours, Dr. Chan's suite was quiet.
The receptionist, Rebecca, had stayed late, just to keep company with Barty in the waiting room. As she settled into a chair beside the boy, he asked her if she knew what gravity was on Mars, and when she confessed ignorance, he said, “Only thirty-seven percent what it is here. You can really jump on Mars."
Dr. Chan led Agnes to his private office, where he discreetly closed the door.
Her hands shook, her entire body shook, and in her mind was a hard clatter of fear like the wheels of a roller coaster rattling over poorly seamed tracks.
When the ophthalmologist saw her misery, his kind face softened further, and his pity became palpable.
In that instant, she knew the dreadful shape of the future, if not its fine details.
Instead of sitting behind his desk, he settled into the second of two patient chairs, beside her. This, too, indicated bad news.
“Mrs. Lampion, in a case like this, I've found that the greatest mercy is directness. Your son has retinoblastoma. A malignancy of the retina."
Although she had acutely felt the loss of Joey during the past three years, she had never missed him as much as she missed him now. Marriage is an expression of love and respect and trust and faith in the future, but the union of husband and wife is also an alliance against the challenges and tragedies of life, a promise that with me in your corner, you will never stand alone.
“The danger, Dr. Chan explained, “is that the cancer can spread  from the eye to the orbit, then along the optic nerve to the brain."
Against the sight of Franklin Chan's pity, which implied the hopelessness of Barty's condition, Agnes closed her eyes. But she opened them at once, because this chosen darkness reminded her that unwanted darkness might be Barty's fate.
Her shaking threatened her composure. She was Barty's mother and father, his only rock, and she must always be strong for him. She clenched her teeth and tensed her body and gradually quieted the tremors by an act of will.
“Retinoblastoma is usually unilateral,” Dr. Chan continued, “occurring in one eye. Bartholomew has tumors in both."
The fact that Barty saw twisty spots with either eye closed had prepared Agnes for this bleak news. Yet in spite of the defense that foreknowledge provided her, the teeth of sorrow bit deep.
“In cases like this, the malignancy is often more advanced in one eye than the other. If the size of the tumor requires it, we remove the eye containing the greatest malignancy, and we treat the remaining eye with radiation."
I have trusted in thy mercy, she thought desperately, reaching for comfort to Psalms 13:5.
“Frequently, symptoms appear early enough that radiation therapy in one or both eyes has a chance to succeed. Sometimes strabismus-in which one eye diverges from the other, either inward toward the nose or outward toward the temple-can be an early sign, though more often we're alerted when the patient reports problems with vision."
“Twisty spots."
Chan nodded. “Considering the advanced stage of Bartholomew's malignancies, he should have complained earlier than he did."
“The symptoms come and go. Today, he can read."
“That's unusual, too, and 1 wish the etiology of this disease, which is exceedingly well understood, gave us reason to hope based on the transience of the symptoms ... but it doesn't."
Be merciful unto me according to thy word.
Few people will spend the greater part of their youth in school, struggling to obtain the education required for a medical specialty, unless they have a passion to heal. Franklin Chan was a healer, whose passion was the preservation of vision, and Agnes could see that his anguish, while a pale reflection of hers, was real and deeply felt.
“The mass of these malignancies suggest they will soon spread-or have already spread-out of the eye to the orbit. There is no hope that radiation therapy will work in this instance, and no time to risk trying it even if there were hope. No time at all. No time. Dr. Schurr and I agree, to save Bartholomew's life, we must remove both eyes immediately."
Here, four days past Christmas, after two days of torment, Agnes knew the worst, that her treasured son must go eyeless or die, must choose between blindness or cancer of the brain.
She had expected horror, although perhaps not a horror quite as stark as this, and she had also expected to be crushed by it, destroyed, because although she was able to survive any misery that might be visited upon her, she didn't think that she possessed the fortitude to endure the suffering of her innocent child. Yet she listened, and she received the terrible burden of the news, and her bones did not at once turn to dust, though unfeeling dust was what she now preferred to be.
“Immediately,” she said. “What does that mean?"
“Tomorrow morning."
She looked down at her clutched hands. Made for work, these hands, and always ready to take on any task. Strong, nimble, reliable hands, but useless to her now, unable to perform the one miracle she needed. “Barty's birthday is in eight days. I was hoping. . ."
Dr. Chan's manner remained professional, providing the strength that Agnes required, but his pain was evident when his gentle voice softened further: “These tumors are so advanced, we won't know until surgery if the malignancy has spread. We may already be too late. And if we aren't too late, we'll have only a small window of opportunity. A small window. Eight days would entail too much risk."
She nodded. And could not lift her gaze from her hands. Could not meet his eyes, afraid that his worry would feed her own, afraid also that the sight of his sympathy would shake loose her perilous grip on her emotions.
After a while, Franklin Chan asked, “Do you want me with you when you tell him?"
“I think ... just me and him."
“Here in my office?"
“All right."
“Would you like time by yourself before I bring him to you?"
She nodded. He rose, opened the door.
“Yes?” she replied without looking up.
“He's a wonderful boy, so very bright, so very full of life. Blindness will be hard, but it won't be the end. He'll cope without the light. It'll be so difficult at first, but this boy ... eventually he'll thrive."
She bit her lower lip, held her breath, repressed the sob that sought release, and said, “I know."
Dr. Chan closed the door as he left.
Agnes leaned forward in her chair: knees together, clasped hands resting on her knees, forehead against her hands.
She thought that she already knew all about humility, about the necessity of it, about the power of it to bring peace of mind and to heal the heart, but in the following few minutes, she learned more about humility than she had ever known before.
The shakes returned, became more violent than previously—and then once more passed.
For a while, she couldn't get enough air. Felt suffocated. She drew great, raw, shuddering breaths, and thought that she would never be able to quiet herself but quiet came.
Worried that tears would frighten Barty, that indulging in a few would result in a ruinous flood, Agnes held back the salt tides. A mother's duty proved to be the stuff from which dams were built.
She got up from the chair, went to the window, and raised the venetian blind rather than look out between its slats.
The night, the stars.
The universe was vast and Barty small, yet the boy's immortal soul made him as important as galaxies, as important as anything in Creation. This Agnes believed. She couldn't tolerate life without the conviction that it had meaning and design, though sometimes she felt that she was a sparrow whose fall had gone unnoticed. Barty sat on the edge of the doctor's desk, legs dangling, holding Red Planet, his place marked by an inserted finger.
Agnes had lifted him to this perch. Now she smoothed his hair, straightened his shirt, and retied his loosened shoelaces, finding it even harder than she had expected to say what needed to be said. She thought she might require Dr. Chan's presence, after all.
Then suddenly she found the right words. More accurately, they seemed to come through her, for she was not conscious of formulating the sentences. The substance of what she said and the tone in which she said it were so perfect that it almost seemed as though an angel had relieved her of this burden by possessing her long enough to help her son understand what must happen and why.
Barty's math and reading skills exceeded those of most eighteen year-olds, but regardless of his brilliance, he was a few days shy of his third birthday. Prodigies were not necessarily as emotionally mature as they were intellectually developed, but Barty listened with sober attention, asked questions, and then sat in silence, staring at the book in his hands, with neither tears nor apparent fear.
At last he said, “Do you think the doctors know best?"
“Yes, honey. I do."
“Okay."
He put the book aside on the desk and reached for her.
Agnes drew him into her arms and lifted him off the desk and embraced him tightly, with his head on her shoulder and his face nestled against her neck, as she'd held him when he was a baby.
“Can we wait till Monday?” he asked.
Some information she'd withheld from him: that the cancer might already have spread, that he might still die even after his eyes were removed-and that if it hadn't yet spread, it might soon do so.